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Cast Your Votes! What Do You Want to See on RareDisease.net?

RareDisease.net is an online community where you can read articles by Health Leaders, connect with others in forums, discover others' stories and share you own, and much more! Our goal...

By RareDisease.net Team

1 min read

Rare Disease International

As a person living with a rare disease, it can be difficult to find other people who also suffer from the same condition. Not knowing people who can relate to...

By Tatiana Corbitt

3 min read

How I Travel With a Chronic Illness

"Still round the corner, there may wait, a new road or a secret gate." – J.R.R. Tolkien Living in a body with a chronic illness is a challenge. My spirit...

By Dusty Terrill

3 min read

Cast Your Votes! What Do You Want to See on RareDisease.net?

RareDisease.net is an online community where you can read articles by Health Leaders, connect with others in forums, discover others' stories and share you own, and much more! Our goal...

By RareDisease.net Team

1 min read

Rare Disease International

As a person living with a rare disease, it can be difficult to find other people who also suffer from the same condition. Not knowing people who can relate to...

By Tatiana Corbitt

3 min read

How I Travel With a Chronic Illness

"Still round the corner, there may wait, a new road or a secret gate." – J.R.R. Tolkien Living in a body with a chronic illness is a challenge. My spirit...

By Dusty Terrill

3 min read

Cast Your Votes! What Do You Want to See on RareDisease.net?

RareDisease.net is an online community where you can read articles by Health Leaders, connect with others in forums, discover others' stories and share you own, and much more! Our goal...

By RareDisease.net Team

1 min read

Rare Disease International

As a person living with a rare disease, it can be difficult to find other people who also suffer from the same condition. Not knowing people who can relate to...

By Tatiana Corbitt

3 min read

How I Travel With a Chronic Illness

"Still round the corner, there may wait, a new road or a secret gate." – J.R.R. Tolkien Living in a body with a chronic illness is a challenge. My spirit...

By Dusty Terrill

3 min read

10 Things I Wish People Understood About Rare Diseases

Being a caregiver to someone with a rare disease can be a complex journey. It not only alters the life of the person affected, but it also impacts the lives...

By Elle Cole

3 min read

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'I Have What?!' What Happens When a New Diagnosis Does Not Make Sense?

As a complex rare disease patient, I'm used to receiving new diagnoses and even reaching the point of desperately wanting a diagnosis just so I can have a name for...